Referrals

Organization dedicated to ending Duchenne:

http://www.CureDuchenne.org

Comprehensive Care for those with Muscular Dystrophy:

Children’s Hospital Los Angeles

https://www.chla.org/neurological-institute/programs-and-services/neuromuscular-disorders-center

Children’s Hospital Orange County/Rady Children’s OC

Neuromuscular Disease Program

UCLA – Center for Duchenne Muscular Dystrophy

https://cdmd.ucla.edu/

Research:

Updated Research on CureDuchenne.org
Research Index
Research News

Equipment:

Custom Night Splints:
http://www.dafo.com/products/dafo-3-5-softy/

Strollers and adapted mobility sites:
http://www.adaptivemall.com
http://www.sammonspreston.com
http://www.maclarenbaby.com

Many electric scooters, manual and power wheelchairs exist. Please consult with your physical therapist and medical equipment supplier when considering these options.  Check out the CureDuchenne DME Guide for helpful information:

https://cureduchenne.org/durable-medical-equipment-guide/